High-risk moms-to-be say: Coping with lupus

High-risk moms-to-be say: Coping with lupus

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When you have lupus, it may seem to the outside world that you're totally fine. But on the inside, lupus can make you feel tired, stressed, and worried – especially now that you're pregnant. Below are tips, advice, and wise words from moms in the our site Community.

Sticking to meds

"The key is to control your lupus first or it could get worse during pregnancy. There are drugs that are safe to use during pregnancy. I'm almost 33 weeks and have been taking hydroxychloroquine, azathioprine, and other medication – and my baby is growing and healthy."

"My nephrologist took me off stronger drugs before I got pregnant. But he and my rheumatologist agreed it was best to keep me on antimalarials. I've been taking antimalarials for five years, and I continued using them when pregnant and breastfeeding. They're one of the safer drugs to take and can help prevent flares. So far there haven't been any issues, and I'm happy I've continued using them."

"I'm taking an anticoagulant, prednisone, and antimalarials. I've been feeding my twins for a month now with a combination of breastfeeding and pumping. It's been great!"

Fending off flares

"I've had flares throughout my pregnancy. They seem to [stay] under control as long as I don't miss more than a couple doses of antimalarials. But when I miss my medication, it's flare city."

"It seems like being pregnant was the best thing for me. I had a great pregnancy with no flares. My daughter came early at 34 weeks, but now she's a healthy 7-month-old who gets into everything."

"My lupus symptoms were much better during pregnancy. I was closely monitored and visited the rheumatologist and high-risk OB more frequently [than other pregnant women]. I had lots of ultrasounds and nonstress tests. I went off some of my meds but didn't have any flares while I was pregnant."

Stress busting

"It's stressful if I don't focus on my choices and being proactive. I don't get a choice about the damage [to my health] or bad lab [tests]. So I focus on good sleep, healthy eating, water walking at the local pool, consuming low-sodium foods, and drinking lots of water to help my kidneys."

"It makes me nervous to think that I'm 34, have lupus, and am in the high-risk category. But I began to get more rest and reduce my stress a few years ago to get my lupus under control. I think that's positive for my pregnancy."

Healthy outcomes

"I tested positive for anti-Ro antibodies, which increased the risk of a fetal heart block. I've had to monitor the baby's heart and get ultrasounds and fetal echocardiograms. I also have to deliver at a hospital far away that can handle a high-risk delivery. So far, so good: I'm 35 weeks, and my baby looks perfect."

"My lupus was in remission for one year before I tried to conceive. Tomorrow, I'm going in for an induction at 39 weeks. I want to encourage other mamas [with lupus] that they can have a perfectly healthy pregnancy."

Visit the Society for Maternal-Fetal Medicine's website for more information and to find an MFM specialist near you.

Watch the video: 2017 Lupus PFDD: Discussion of the Daily Impact of Lupus (July 2022).


  1. Estevon

    I think you are wrong. I'm sure. I can prove it. Email me at PM, we will talk.

  2. Mihai

    Where is the logic?

  3. Aldric

    very useful phrase

  4. Nikodal

    A good argument

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